The meaning of life, something we all contemplate at some point in our lives or at different junctures. My life has taken turns I never planed for and never imagined in my wildest nightmares and yet here I am contemplating the same question … what is the meaning of life?
I’m 35, female and single. Five years ago I had a relapse of Myalgic Encephalomyelitis and/or Chronic Fatigue Syndrome ‘ME/CFS’ and have been unable to work since. Most of the first 3 years were spent in bed and asleep, awake perhaps for a few nonconsecutive hours per day. The last 2 years have been a roller coaster between relapses and being able to go out for an appointment or the shops once a fortnight and not taking up more then a few hours.
ME/CFS is surrounded by controversy, from what it is called to whether it is psychological or physiological. As a suffer, one thing I can tell you without a shadow of a doubt, this thing is physical!
I am trying to figure out life with this immensely debilitating condition. Trying to find answers, anything that might give me even the smallest amount of functionality. I am also trying to navigate the regular things that everyone else has to deal with. When I started on this journey with this condition I knew nothing about it and there was very little information out there. I only hope that maybe my experience will help someone in a similar situation, even if it’s only to make them feel like they are not alone in this. One of the hardest things that I’ve found is dealing with the loneliness.
the chronic condition 